This is the story of my daughter Oliana who was born blind. To read her complete story start with the blog titled Oli's birth. You can email me at shannongardner@live.com




Thursday, January 22, 2009

Time for an update

It's been a while since I've written anything. Sorry. The kids are doing great! Growing up so fast as you can see from the pictures. Oli is doing well. She got a new eye on the right side last month that finally sits right in her socket. It looks really good. She went to the cardiologist a couple of months ago and her heart is now completely normal. That was great news! She also had another test on her kidneys. She still has some urine that backs up into her kidneys so she still has to be on the antibiotic but the doctor said it looks better on one side. She'll go back and have another test when she's 3 to see if she has outgrown it yet. The doctor seemed hope full that she would. We finally got her sleeping through the night almost every night. That is so much better for all of us!! I think I've talked about this before, but your sleep wake cycle is dependent on sunlight hitting your eyes and prompting a gland in you brain to produce melatonin which regulates when you sleep and when your awake. That's why its natural to sleep when it's dark and be awake when it's light. Since now we don't think Oli sees anything at all she doesn't have that cycle. We started giving her an over the counter supplement of melatonin. She takes 5 mg every night before bed. Ever since the first night she took it she has been sleeping normally!! Yeah!! No more getting up at 2am and staying up till 10am. She actually sleeps like a normal 20 month old. She wakes up on her own in the morning and wakes up from naps on her own. It's really helped with her energy level,her attitude and she's put on some weight. She finally 20 pounds! Such a little peanut. Tall and skinny.
Speaking of energy she loves to stand and walk around the house (with help). She can stand and cruise along the couch by herself, slowly. She can push her walker and she'll walk while holding onto my hands. She's still kind of stiff legged but hey, she gets there. She was in physical therapy every week but, my insurance changed and now we have to find a new therapist. She really made a lot of progress. She can almost pull up by herself. She just needs a little boost to get her leg out from under her.
So all in all everything is going well. Kekoa is getting so big. He's such a boy. He loves that "dune truck". That's what he calls it. Santa brought it for Christmas. He's so rough with it. The faster he goes the more reckless he drives. Oli likes to ride in it until he gets crazy and goes in circles. Then she's ready to get out! It's scary to think what kind of driver he's going to be. He wants to be a race car driver. Mommy hopes he changes his mind. It's funny because he will actually sit and watch car racing on T.V. He'll sit there for hours just watching the race. Ugh!! I hope he outgrows that too! That's when mommy finds housework to do. Hey, it keeps him occupied. Terrible 3's it should be called. He's still a great kid and loves his sister. So protective of her.
So that's what's new here. I'll try not to let it go so long before I write again. Hope everyone is doing well.

1 comment:

Anonymous said...

Thanks for doing this Shannon! It means so much to see her progress, and your progress in understanding and loving her. You are one special woman! Love, grandpa Dave